{"id":43967,"date":"2020-05-28T16:32:16","date_gmt":"2020-05-28T23:32:16","guid":{"rendered":"http:\/\/eltecolote.org\/content\/?p=43967"},"modified":"2020-05-28T16:35:59","modified_gmt":"2020-05-28T23:35:59","slug":"for-some-who-are-immunocompromised-wearing-face-masks-is-nothing-new","status":"publish","type":"post","link":"https:\/\/eltecolote.org\/content\/en\/for-some-who-are-immunocompromised-wearing-face-masks-is-nothing-new\/","title":{"rendered":"For some who are immunocompromised, wearing face masks is nothing new"},"content":{"rendered":"\n<p><em>*Editor\u2019s note: Wilson Gomez is a journalism student in SF State\u2019s Journalism 575 Community Media this spring. Taught by professor Jon Funabiki, the class is a collaboration with El Tecolote<\/em>.<\/p>\n\n\n\n<p>In the era of COVID-19, many people are still getting used to masks, gloves, sanitizer and social distancing, but for patients who cope with chronic immune disorders to avoid infections, this is nothing new.<\/p>\n\n\n\n<p>\u201cThey knew that everyday communicable diseases like the common cold could put them in mortal danger since their bodies were not equipped to fight infection,\u201d said Jim Sliney, director of patient content at Patients Rising, a nonprofit that helps people with chronic and\/or life-threatening illnesses, such as people living with HIV, which attacks the body\u2019s immune system.<\/p>\n\n\n\n<p>According to Sliney, while it was already risky for patients who had a weak immune system to go out before the epidemic, it\u2019s downright dangerous now. Cancer patients in chemotherapy risk their lives every time they go to the hospital since chemo weakens their immune system and hospitals have a high concentration of people with COVID-19. On top of that, not everyone is taking shelter in place and social distancing seriously.<\/p>\n\n\n\n<p>Conservative activists have taken to the streets in recent weeks to protest the closing of schools and businesses, often declaring that COVID-19 isn\u2019t real or isn\u2019t as deadly as scientists say. For some, an epidemic of this scale might be new, however for people who lived through the AIDS epidemic of the 80\u2019s, there is a sense of eerie similarity.&nbsp;&nbsp;<\/p>\n\n\n\n<div class=\"wp-block-image\"><figure class=\"alignleft size-full is-resized\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" src=\"https:\/\/i0.wp.com\/eltecolote.org\/content\/wp-content\/uploads\/2020\/05\/IMG-0431.jpg?resize=327%2C498&#038;quality=89&#038;ssl=1\" alt=\"\" class=\"wp-image-43968\" width=\"327\" height=\"498\" srcset=\"https:\/\/i0.wp.com\/eltecolote.org\/content\/wp-content\/uploads\/2020\/05\/IMG-0431.jpg?w=880&amp;quality=89&amp;ssl=1 880w, https:\/\/i0.wp.com\/eltecolote.org\/content\/wp-content\/uploads\/2020\/05\/IMG-0431.jpg?resize=164%2C250&amp;quality=89&amp;ssl=1 164w, https:\/\/i0.wp.com\/eltecolote.org\/content\/wp-content\/uploads\/2020\/05\/IMG-0431.jpg?resize=315%2C480&amp;quality=89&amp;ssl=1 315w, https:\/\/i0.wp.com\/eltecolote.org\/content\/wp-content\/uploads\/2020\/05\/IMG-0431.jpg?resize=768%2C1172&amp;quality=89&amp;ssl=1 768w, https:\/\/i0.wp.com\/eltecolote.org\/content\/wp-content\/uploads\/2020\/05\/IMG-0431.jpg?resize=370%2C565&amp;quality=89&amp;ssl=1 370w, https:\/\/i0.wp.com\/eltecolote.org\/content\/wp-content\/uploads\/2020\/05\/IMG-0431.jpg?resize=800%2C1221&amp;quality=89&amp;ssl=1 800w, https:\/\/i0.wp.com\/eltecolote.org\/content\/wp-content\/uploads\/2020\/05\/IMG-0431.jpg?resize=185%2C282&amp;quality=89&amp;ssl=1 185w, https:\/\/i0.wp.com\/eltecolote.org\/content\/wp-content\/uploads\/2020\/05\/IMG-0431.jpg?resize=740%2C1129&amp;quality=89&amp;ssl=1 740w, https:\/\/i0.wp.com\/eltecolote.org\/content\/wp-content\/uploads\/2020\/05\/IMG-0431.jpg?resize=20%2C31&amp;quality=89&amp;ssl=1 20w, https:\/\/i0.wp.com\/eltecolote.org\/content\/wp-content\/uploads\/2020\/05\/IMG-0431.jpg?resize=400%2C610&amp;quality=89&amp;ssl=1 400w, https:\/\/i0.wp.com\/eltecolote.org\/content\/wp-content\/uploads\/2020\/05\/IMG-0431.jpg?resize=600%2C916&amp;quality=89&amp;ssl=1 600w, https:\/\/i0.wp.com\/eltecolote.org\/content\/wp-content\/uploads\/2020\/05\/IMG-0431.jpg?resize=31%2C48&amp;quality=89&amp;ssl=1 31w\" sizes=\"auto, (max-width: 327px) 100vw, 327px\" \/><\/figure><\/div>\n\n\n\n<p>Only 35 years ago, while the world was in the middle of the AIDS epidemic, New York\u2019s then-governor, Mario Cuomo, who is father of current Gov. Andrew Cuomo, closed gay bars, bathhouses, and any other location frequented by gay individuals deemed \u201chigh-risk for sexual activity.\u201d A poll conducted by the Los Angeles Times at the time found that <a href=\"https:\/\/www.latimes.com\/archives\/la-xpm-1985-12-19-mn-30337-story.html\">a majority of people in the country were in favor of quarantining people with AIDS.<\/a><\/p>\n\n\n\n<p>\u201cI was 24, maybe 25, when I went to visit a friend in St. Vincent\u2019s Hospital on 7th Ave. in New York City. I never found him,\u201d said Vincent Crisostomo, program manager of the Elizabeth Taylor 50-Plus Network. \u201cThe hospital was overrun with AIDS patients and didn\u2019t have enough beds, so those who didn\u2019t have a room laid on gurneys in the hallway.\u201d<\/p>\n\n\n\n<p>According to Crisostomo, The Elizabeth Taylor 50-Plus Network is a San Francisco-based organization that helps AIDS survivors aged 50+, who never expected that they\u2019d live to 50, cope with AIDS Survivor Syndrome.<\/p>\n\n\n\n<p>Crisostomo, who says that while San Francisco hasn\u2019t been hit as hard as other cities, is stunned by the news coming out of heavily impacted cities. \u201cI can honestly say, we never thought we would experience anything even remotely similar in this lifetime, yet as of March 16\u2014here we are,\u201d Crisostomo said.&nbsp;\u201cOur members are finding that it is one thing to live in isolation by choice and it is another to have it imposed on you.\u201d<\/p>\n\n\n\n<p>That is one of the areas where the Elizabeth Taylor 50-Plus Network tries to help, by providing people in quarantine a sense of community. People are learning new skills, reaching out to family and planning on how they want to live their lives once the quarantine is over. According to Crisostomo, one member told him: \u201cI\u2019m so tired of being pissed off and angry at everyone.&nbsp; I realize that I have had 37 really good years, and if I don\u2019t make it through this, I don\u2019t want to go out angry and pissed off. So, I am making changes.\u201d<\/p>\n\n\n\n<p>As for what will happen after the pandemic, no one is sure. \u201cOur hope, which is the hope of all chronic illness, rare illness and immunocompromised patients, is that healthcare will become more patient focused as a result of this crisis,\u201d Sliney said.&nbsp;<\/p>\n\n\n\n<p>Using technology like Telehealth, which allows patients to see doctors without having to physically go to a hospital will be crucial going forward.<\/p>\n\n\n\n<p>\u201cIt&#8217;s important to remember that to help the immunocompromised communities have the kind of rich, interactive life they deserve, we have to look at social distancing and prevention as a social good. Caution and common sense must no longer just be something sick people have to practice,\u201d Sliney said.&nbsp;<\/p>\n\n\n\n<p>According to Crisostomo, most experts say it takes about 25 years for people who experienced major trauma to unpack that and for the insights to set in and integrate.&nbsp; \u201cThere are so many things in the world that are wrong and so many things in the world that are right.&nbsp; I see this as a time to reset,\u201d Crisostomo said. \u201cMy thoughts are that if we use science as our guide while remembering the lessons learned during the quarantine all people not just PLWH will be that much better.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"<p>*Editor\u2019s note: Wilson Gomez is a journalism student in SF State\u2019s Journalism 575 Community Media this spring. Taught by professor Jon Funabiki, the class is a collaboration with El Tecolote. In the era of COVID-19, many people are still getting used to masks, gloves, sanitizer and social distancing, but for patients who cope with chronic [&hellip;]<\/p>\n","protected":false},"author":35,"featured_media":43968,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"newspack_popups_has_disabled_popups":false,"newspack_featured_image_position":"","newspack_post_subtitle":"","newspack_article_summary_title":"Overview:","newspack_article_summary":"","newspack_hide_updated_date":false,"newspack_show_updated_date":false,"footnotes":""},"categories":[3570,7],"tags":[18556,18588],"coauthors":[18445],"class_list":["post-43967","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-health-news","category-news","tag-covid-19-en","tag-jour-575","entry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>For some who are immunocompromised, wearing face masks is nothing new - El Tecolote<\/title>\n<meta name=\"description\" content=\"*Editor\u2019s note: Wilson Gomez is a journalism student in SF State\u2019s Journalism 575 Community Media this spring. 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